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The Albino ‘Princess’ Growing Confidence in a Crowd

Sixth Tone  · 公众号  ·  · 2024-11-20 22:25
    

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The mother of a 5-year-old girl with albinism shares how cosplay and catwalks have helped her daughter combat the stigma of the condition. By White Night Workshop Editor’s note: Sun Chenxi, nicknamed “Elsa,” is a 5-year-old girl from China’s eastern Anhui province who has albinism, an inherited condition that presents in extremely light skin, hair, and eyes, as well as causing other ailments, due to a melanin deficiency. To help her daughter live a confident life and educate the public about the condition, Sun’s mother takes every opportunity to place her among crowds, even encouraging her to take center stage at a fashion show. Here, her mother shares their story. During this year’s National Day holiday, I took my daughter Elsa to Beijing, where her father works. As we got off the subway one time, she spotted a female cosplayer with white hair, and followed her. When we go to get new glasses or to the hospital, Elsa will occasionally meet other albino children, but she ha ………………………………

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